HUNDREDS of bikers are set to turn out for a Disney-themed funeral procession in Basildon for a five-year-old boy who was a “ray of sunshine”.

Noah Cox-Lee, five, was diagnosed with a rare neurological generic condition, called FOXG1 Syndrome, when he was just 15 months old.

Sadly, Noah passed away aged just five on May 17, but despite all the battles he faced he “never stopped smiling”.

His parents, Channell Cox-Lee and Terence Cox-Lee, from Basildon, have paid tribute to their son ahead of his funeral where hundreds of bikers are set to lead the way as Noah makes his final journey.

Channell said: “Our hearts are completely broken. Nothing could describe to you the pain and darkness we feel without his light present in our lives.

“Noah fought so many battles. He was in and out of hospitals and was diagnosed with many health issues that all stemmed from his FOXG1 Syndrome.

“Yet through all the battles he faced, he did not stop smiling. He was such a ray of sunshine and the light in so many lives.

“He was the most happy, smiley boy you could ever meet. His laughter would just light up any room and instantly cheer you up.”

Terence added: “Noah was the most happiest boy I could ask for.”

FOXG1 Syndrome is a very rare neurological genetic condition. To date, there are only about 1,000 individuals living with FOXG1 syndrome worldwide and there is no cure.

There are many symptoms of it, including feeding difficulties, GERD, microcephaly, seizures, visual impairment, motor delays, speech delays, as well as movement disorders.

Channell and Terence are both aiming to raise awareness of the condition to help find a cure and help children with the condition.

Despite his condition, Noah was all about being positive and happy. He had a huge love for Disney. Some of Noah’s favourites included Moana, The Lion King, Cars, Toy Story, and Encanto.

To give Noah “the best send off possible” motorbike riders across south Essex are set to come together on Friday, June 30, to escort him on his final journey with a Disney theme to it.

The hearse is leaving Pitsea Co-op at 11am, escorting Noah to Basildon Crematorium.

Channell added: “We are so grateful and touched by everyone that is making our precious boy’s final journey the best possible. Disney was his happy go to, and Noah also always loved cars and bikes too. He was such a light to many.”

Any motorbike riders interested in getting involved should visit the Thurrock Bikers Facebook page for more details.